Organ donor's story spurs bill to give state employees paid time off for such donations, create tax deduction for related expenses

Beth Burbridge gave Jackson Alldaffer a kidney. (via CJ)

"A woman who donated an organ to a complete stranger, then mounted a campaign to give paid leave to people who do likewise, told her story Thursday and moved a legislative committee that approved a bill giving the benefit to state employees," Dalton Stokes reports for The State Journal in Frankfort.

Beth Burbridge of Louisville is an analyst for a health-care company (she won't name it, but says it's not involved in organ transplants). So, she knew the medical risks of donating a kidney, but she didn't know the financial risks, Bailey Loosemore reports for the Courier Journal.

"She could be denied health or life insurance because she'd had the surgery," Loosemore reports. "Other states have laws in place that alleviate the risks or offer protection to live organ donors, Burbridge learned. But in Kentucky, there are none."

Burbridge told the House State Government Committee that "When she asked her employer to schedule some time off for the operation and recovery, she was told all the time off would have to come from time she had saved and the rest would be unpaid," Stokes reports.

“I was speechless,” she told the committee. “The surgery was not elective to the young man who was dying.” She had learned of his plight from a post on her neighborhood's Facebook page.

"So, one Monday she had final testing at the hospital. Tuesday, she donated a kidney. Thursday, she returned home," Stokes writes. "On Friday she needed to be off painkillers to make sure she could handle eight hours without medication, because she had to go back to work on Monday."

She worked from home that day, but “anything complicated took me all day,” she told the committee, and she had to tell colleagues who asked her questions that they would have to wait for answers.

"Seeing the difficulties that face living organ donors," Stokes reports, "she wrote Rep. Jerry Miller, R-Louisville, asking for help.

“She knew exactly the best way to approach it,” Miller told the committee, which he chairs. It approved the bill without dissent. One member, Rep. Kevin Bratcher, R-Louisville, asked Burbridge, "Where do you keep your wings? That was an amazing story."

"Burbridge’s story began with a Facebook post," Stokes writes. "One morning before she got to work, she saw a plea for help from the family of Jackson, a dying boy who lived in her Louisville neighborhood. He needed a kidney, but it couldn’t come from family because the disease was genetic. She saw she was a match for the blood type they needed and asked herself, 'What if this was our family? . . . I kept thinking about my love for our sons; what would I do to save them?'

"Burbridge underwent myriad tests on two occasions before she could surprise Jackson’s family with the news that she was going to save their son, Stokes reports. Burbridge told the committee, “I will never forget this day or the way Mindy [Jackson’s mother] broke down crying and hugged me for the longest time. Derek [Jackson’s father] was in such disbelief that he kept me talking for hours just to hold on to the moment.”

The bill would give state employees who donate organs six weeks of paid leave, those who donate bone marrow a week’s paid leave, and create a tax deduction for expenses related to such donations. It now goes to the Rules Committee, which could send it to the full House or to another committee.

Miller got a similar bill passed on the third try in 2016, but then-Gov. Matt Bevin, on grounds that it created tax credits for employers. Miller said he scaled back the plan to tax deductions in light of the state’s fiscal difficulties.

Doctors told the committee that Kentucky had only 72 living organ donors last year, that 928 people in the state are waiting for organs who would be covered by the bill.

“We just don’t have enough donations from deceased donors,” said Dr. Tom Wade, medical director of kidney transplants at the University of Kentucky. “It’s very important that we encourage and protect” living donors; we owe them our gratitude and whatever protections we can give them.”